Koopman Kraziness

I was talking with a friend this evening and I realized something.  I have a love/hate relationship with social media.  I love being able to see what friends on the other side of the country are doing, or see that people have found true love or are expecting a new bundle of happiness, but at the same time, I hate it. I hate what social media has turned us into.  I hate that I have a hard time going 10 minutes without picking up and checking my phone.  I hate that it interrupts time with my family, friends and significant other.  I hate how easy it has become to pretend to be someone or something that we aren't simply by cropping other people out of a picture or posting only the really good (or really bad) side of a story.  I hate how easy it is to make a passive aggressive comment or share a picture that we "just agree with" when really it's supposed to be a subtle dig at someone we are secretly hoping sees that post. Social media, in many ways, has kil...

Well, sickness has hit the house again.  Kamden started with the sniffles a couple of days ago, but hadn't been showing any signs of feeling badly in general, so I opted to just watch him.  The next day we had coughing starting up, but again, nothing major.  Yesterday, his sinuses looked to be swollen and Over the course of the night last night, his cough turned very wet and he was gagging and gasping for air part of the time.  I got him comfortable and he slept through the night.   * Disclaimer - before anyone freaks out and says I should have gone to the ER, this sort of thing happens in our house like clockwork about every 6 weeks.  We have a nebulizer and medication on hand to take care of any asthma attacks or breathing troubles that may come up, so I was prepared and we were watching carefully.*  Fast forward to this morning - his sinuses seemed less inflamed, but his cough sounded terrible and it was causing him to dry heave and gag.  I o...

I always say that I need to blog more often, but it's really going to have to happen.  Things are looking like they are going to become really intense and involved over the next few months, and I have to document it all somewhere or I'll never keep track of progress. In regard to my sweet Kamden...  Where do I start?  Just before Spring Break, we started noticing some behavioral changes.  Nothing to severe, but enough to catch attention of those at home as well as school and therapy.  After returning to classes, things seemed to just keep going down hill.  Kamden has been very much not himself in regard to how he acts and reacts to those in authority, and even in how he treats his friends and classmates.  Additionally, he has started to lose his motor coordination, speech processing, and other normal functions.  The most likely cause is that he has started having complications tied to bilateral ventriculomegaly.  We were told after his MRI ...